Hello, and welcome to Chronic Life Hacks.
My name is Claire, I am from Australia and I have been living with ME/CFS since the early 90’s when I was a teenager. I know what it is like to have life disrupted by pain, fatigue, and other symptoms and the need to adapt to limitations and approach life just a bit differently to my healthy peers.
I started this site because I had a lot of ideas to share that have made my life with chronic illness more enjoyable. I felt certain that there are many other people with a chronic illness that impacts what they can do who still want to find ways to have an enjoyable life.
Sometimes when people have a chronic illness they can feel that they don’t have the right to do enjoyable things. Why should I sit outside with a book while everyone else is at work? My belief is that when you cope with a pile of symptoms 24/7 and when much of your energy is used on tasks that others do without thinking about you need to balance it out with enjoyable things. I’m not saying if you are able to work to give it up and live a life of leisure, more don’t be a martyr and deny yourself enjoyment when you aren’t feeling well.
Do you get to the end of the day, week, or month feeling like you aren’t enjoying your life as much as you’d like to?
Are your tasks of daily living taking up too much energy, time, and head space?
Do you want to incorporate meditation or gentle movement like yoga into your management plan?
Do you want to fit more creative activities into your life? (e.g. reading, craft, studying, listening to music, gardening, baking)
Could your downtime include more enjoyable activities?
Are there technology related things you have heard about but haven’t worked out yet? (e.g. podcasts and eBooks)
If like me you have a chronic illness that disrupts your life I am sure you answered yes to some or most of these questions.
There aren’t any foolproof ways of making your life more enjoyable when you have a chronic illness but the following are things that make my life significantly more enjoyable when I don’t feel well. These are a starting point and things most people can easily take action on compared to things like relationships and finances.
1) Strategies that make everyday things such as the Tasks of Daily Living a bit easier.
More articles coming soon!!
2) Meditating and using yoga for physical and emotional well being, strength, and keeping my body moving when it feels stiff, sore, and achy and my mind feels sluggish.
3) Making room for creative activities.
Brand new 14th September Get Creative Book Unlock Time and Energy so you can fit Creative Activities into Your Life (whatever your life looks like….)
Buy and download straight away http://chroniclifehacks.com/get-creative-book/
4) Using technology for entertainment, distraction from symptoms, and to access resources.
Explore the site and I am sure you will discover some great ideas to help make your life with a chronic illness more enjoyable. So far the content on this site is focused on Entertainment and Technology. In time it will become more evenly distributed in the other topics.
Sign up to my Chronic Life Hacks Little Letters email newsletter where you can read some of my personal thoughts and experiences of living with a chronic illness and get updated when new content is available.
Follow me on Instagram @chroniclifehacks for my colourful cheerful photos with a small chronic illness message and helpful tips and strategies like #SomeNotNone, #TinyTasks, and #ForFutureMe.
Find me on Facebook https://www.facebook.com/chroniclifehacks where my Instagram photos are also posted.